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feeds and general update

i've became quite crap at updating the blog, but i'm sure you'll know how hectic life is having a baby around, i'm not complaining it's just the best thing ever, Leiws is just a wee doll, a dream come true :) we've changed his feeds to 3 hourly due to the fact that the dietician wanted his amounts upped in line wih his weight, the amount he was getting already was pushing his reflux over the edge, he was losing so much of his feeds all the time, so i knew no way he could tolerate getting even more all at 1 time, so i decided it had to be 3 hourly if he was to get the amounts upped and so far so good, he is actually getting slightly more than the dietician wanted him to have and although he still has a vomit after every feed during the day, it is'nt very much at all, the best bit though is that he keeps down 3 whole night feeds and only has a small mouthful after the 4th night feed, but last night he kept down all 4 yay go Lewis, we have been on the 3 hourly feeds for just over a week now, which leads me to his weight :s a week ago he was in to get his 3 month jags with the health visitor n she weighed him for me while we were there, he weighed in at 12lb 6oz, yesterday he was weighed again, he weighed 12lb 7oz, so in a week he has put on 1oz :s not what i wanted to hear considering he's getting more of his high calorie milk in a day and actually keeping what i'd say 'most' of it down, so she measured his length and decided that he's had a spurt in height and this is where it's all went into his height spurt rather than his weight, i hope so and i really hope for a better weight gain when we go back in a fortnight, though i might just actually pop in next week and see. So he's now gone from the 2nd percentile on his height to the 9th, and still on the 2nd percentile for his weight, health visitor is really happy with him though but i still worry, i guess it's only natural, she says the chart shows he's not just plodding along on the same percentile, he's actually climbing it, which shows he's doing well, just hope he catches up to the 9th percentile for his weight soon. We've been testing out his taste buds for a few days now with some baby foods, i was worried that the fact he won't have anything to do with sucking a bottle would mean he probably wouldn't want anything to do with a spoon, but he lets it in his mouth and actually opens up for more, he only takes a tiny drop on the spoon at a time and only has a few of these before he gets bored, but it's a start and i'm just happy he's happy to experiment, so far he's had baby rice, i think it's too tasteless for him though, he quite likes banana porridge and fruit porridge and also likes cauliflower brocolli cheese, and just before he had some strawberry cheesecake, i think it might have been a bit too 'tart' for him, he prefers chocolate pudding :) oh and he had his 2nd RSV jag on the 23rd february, due for the 3rd on the 23rd march though they say phone first because he may not not need it, not sure how they'll know over the phone whether he needs it or not :s He also had a hearing test last week, the women came out to the house to do it, i think he was liking all the noises coming through the earphone things at him, he was all excited n everything, that meant she couldn't get an accurate test bacause he was so active flapping around, from what she did get though she thinks he may have some fluid behind his ears, we've been referred to somewhere else to get him retested when he's between 8 and 10 months old and they'll do different tests, where we'll actually be able to see him responding to noises etc rather than just put earphone things on him and let the sensors do the test. here's some recent pics of my wee cutie

1st visit to the Diaphragm Clinic

yesterday was Lewis's 1st appointment at the Diaphragm clinic, when we got there we were sent along for xray, Lewis was soooo good lying still and we were in and out in like 5 minutes, then we headed back to the clinic and went into see the physio people, they're happy with Lewis in that sense and said he's came on leaps since they last seen him before he was discharged from hospital, gave us some wee things to do with Lewis so he still gets to work the muscles in his mouth/face as he's refusing his oral feeds and we're getting referred to speech therapist near home to work on the feeds, but to be honest there's only 1 thing that needs to happen to get Lewis feeding again and that's to come off the yukky smelling and tasting high calorie milk but they won't do that, next stop was into see the doctor, apparently Lewis is only just scraping by with weight gain and he was concerned at the amount of feeds in a day Lewis was bringing back up and the xray showed his right lung looks whiter than the left, he says that could be the reflux coming back on his lungs though sooooooo he wants Lewis admitted to the hospital for a couple of days to run tests on the reflux, to determine how bad it is etc and to see if the operation would benefit him, though he's not keen to do the operation, he would rather just wait it out and see if it gets any better as Lewis gets bigger and starts on solids etc but like he said, bringing back 5/6 out of 6 feeds in a day is not good. he says we'll be looking at the beginning of March to be going in, great, last place i want to be over Nathan's 2nd birthday, we have plans for his birthday as well, will just have to wait and see what dates they send us out for it and go from there, just worried about his 'good' lung looking whiter than the 'bad' lung. He really is just a wee treasure though, he's so precious to us after everything he went through to be here and moreso after Nathan etc, i'll add some pics xx Hayley + Sunshine Warrior, Lewis xx

Refusing feeds

well, seems like Lewis doesn't like the infatrini milk, the hospital put him on it for extra calories but he hates it, has refused EVERY oral feed, but then in my opinion it's more important for him to get the extra calories and put on the weight rather than being able to suck from a bottle, will be trying him with more solids soon but he doesn't seem to like the spoon in his mouth, though he quite likes the taste of baby rice and rusks his reflux is pretty bad too poor wee thing, so i now have a nice big stock up on washing powder to keep up with all the washing of things he's covered in 'brought back up milk' nothing else to update on really, have an appointment on the 19th at the diaphragm clinic and an appointment with the surgical paediatrician on the same day though i have no idea what that one is for, but hopefully will be nothing to report from those appointments because hopefully everything will be ok.

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